Alliance for Rare Cancers – Uniting the Entire Rare Cancer Community

Every cancer patient deserves to benefit from the latest advances in cancer treatment.

If we act today, we can propel rare cancer patients to the forefront of scientific advancement and ensure they finally have access to the life-saving treatments they deserve. Learn More

The hidden unmet need

Rare cancer patients have been left behind in the fight against cancer.

Rare cancers represent 1 in 4 cancer diagnoses in the U.S. and include every type of pediatric cancer. Yet rare cancers commonly have no standard of care or set treatment options, leaving many patients and their families without a clear path forward.

Gary Schwatz, MD, FASCO
ARC Vice Chair of the Board

The Challenge

The 5-year survival rates for patients with rare cancers have remained stagnant despite 25+ years of considerable progress in outcomes for “common cancers” including in some cases, durable remissions.

The Opportunity

What is needed is a collaborative open source rare cancer “cure machine” that provides researchers access to tissue, models and data. New science is poised to deliver life-saving cancer treatments and the rare cancer community is uniquely positioned to lead the transformation to data-driven cancer treatment and rapidly bring it into existence.

The Good News

Scientifically, there is no reason to believe that rare tumor types are untreatable. We have assembled the believers who have begun to build the “cure machine” scalable model that can make it possible.

Get Involved

Through unprecedented collaboration at the needed scale, we can seize this opportunity to propel rare cancers to the forefront and usher in the full promise of data-driven therapy for all cancer patients. We invite you to learn more about our national collaboration and this unprecedented opportunity to forge a path to ending rare cancer as we know it. Learn More

Alliance for Rare Cancers I Jedi Rare Cancer Foundation

P.O. Box 683501, Park City, Utah 84068

The Alliance for Rare Cancers is a fiscally sponsored program of the Jedi Rare Cancer Foundation, a 501(c)(3) nonprofit organization, accepting tax-deductible donations from individuals, corporations, family-advised funds, and foundations. Federal Tax ID 86-2610819. All donations are tax deductible as allowed by law.

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